There are different types of Huntington’s disease (HD) symptoms and many ways to manage them. Keep in mind that everyone experiences these symptoms differently and they can change over time. In general, symptoms tend to develop between the ages of 30 and 50 years.
Treating Huntington’s Together
Putting a care team together
Different people have different HD symptoms. This is why you may want to have your physician refer you to a neurologist who often takes on the role of care team leader. A healthcare professional care team can treat specific symptoms. You can work with your team leaders to find specialists who match your specific needs.
Team Leaders
Neurologist
Has specialized training in managing disorders of the brain and nervous system
Psychiatrist
Specializes in mental health
Social Support
Social Worker
Can help guide you during your journey with HD; helps with disability, financial planning, social crises, and community support groups
Genetic Counselor
Provides patients and families with the pros and cons of genetic testing and gives support to make an informed decision about HD genetic testing
Nurse Specialist
Manages cases, gives telephone counseling, and provides patient support
Dietitian
Assesses nutrition and provides food plan to help patients meet their nutrient requirements
Movement and Physical Support
Physical Therapist
Can help with balance, strength, mobility, and exercise
Occupational Therapist
May help with daily living such as managing tasks, driving, home safety, and eating
Massage Therapist
May provide physical and emotional relief
Acupuncturist
Can help patients with balancing energy
Thinking, Behavioral, and Communication Support
Neuropsychologist
Specializes in symptoms related to personality and emotions
Speech and Language Therapist
Provides support for speech and swallowing symptoms
Your HD Adviser
Social workers provide much-needed information, education, and access to support groups.
Specialized Centers
Find a center with an HD care team that understands your specific needs. Below are a few examples:
HDSA care services »
HSG credentialed sites »
Disability and Financial Planning
Planning for the future financially is essential for people who have HD and can no longer work.
Participate in a Clinical Trial
Researchers are finding new ways to help treat HD in clinical trials. Not everyone can participate, but anyone who does can help the community.
Genentech makes no representation as to the quality of social work services, medical or other care provided by individuals or entities included on these third party websites and does not recommend or endorse any of them. The providers listed on such websites may not be the only ones available. Please make decisions about your care team carefully and based on your individual needs and situation.