It may be difficult to talk with people about Huntington’s disease (HD). Many people don’t know much about the condition, and you might not know what to say about it.

Whether you have HD or take care of someone who does, it can be easier to talk about HD if you’re prepared. You can also connect with a social worker to help before you start these conversations. 

Talking with specialists about HD

If you’re at risk for HD, you may want to get some information about the disease. Speaking to your doctor can be very helpful so you can get all of your questions and concerns addressed.

Predictive genetic testing options

Talking to your neurologist

Having children

Planning for the future

Telling others about your HD

A loved one or family member who is not at risk

A family member who may be at risk

Your manager or coworker

Talking to someone with Huntington's disease that you're caring for

Being a caregiver to a person with HD can be challenging. You want to make sure that you’re doing everything you can for your loved one, while also taking care of yourself.  Take a look at these tips on talking about your role in the life of someone with HD.

How to be a better caregiver or companion

Your needs as a caregiver

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You Are Not Alone

A support group could connect you with others who understand what you are going through.
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Join the Fight

Help make a difference in the HD community by volunteering.